Posted by
arlina
18 yrs ago
hi everyone, just want to share my feelings and wish someone can relate to how I feel. Last year was a big challenge for us. My husband was diagnosed with lung cancer stage 4. We went thru the chemotheraphy and radiation and all hospital visits together.The chemo worked on him, but every now and then I always have the creeps especially when I will hear him cough. I feel so
paranoid with my self as well thinking I have this and that kind of cancer. Is there someone out there who have gone what I have been through ? Did you do any program after the chemos and radiation?
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Hi Arlina,
I understand how it is to have your loved one go through this challenging period. Sometimes it's even worse for the family than the patient. From experience, it's best to learn all you can about cancer care. Knowledge empowers you, and can help you overcome your fear.
Surround yourself with positive people always. Join a cancer support group if you don't have friends and family here. I found this site but have no experience with this organization. You may get in touch with them and see if there are people who are in the same situation as you.
http://www.cancer-fund.org/html/eng/who/index.html
Read Lance Armstrong's "It's Not About The Bike". It's an inspiring story. Check out the website of Livestrong:
http://www.livestrong.org/site/c.jvKZLbMRIsG/b.594849/k.CC7C/Home.htm
Hang in there Arlina, it will get better. Stay strong :)
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thank you for your reply. Yes, I have been reading the Lance Armstrong books and it help me alot. I have been lucky to have friends who were so supportive but at the end of the day, when I am by myself- I am so scared. I need to be strong in front of the kids as well. At the moment, he is done already with all the treatment. He only visit the doctor every 6 months for petscan starting this year.Anyways, thank you Annebin.
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Dear Arlina
please keep hope and give hope to your husband. Without hope you cannot fight a cancer.
To find hope, it's extremely difficult in Hong Kong especially if you are western, institutions here do not understand western needs. I'm thinking about Cansurvive, Cancer Fund... which have been totally inadequate. From my part, I found support with Raja Yoga courses, they are free, the centre is in Tin Hau.
You can order also a incredible book: remarkable recovery from Marc Ian Barasch and you will see that cancer can be reversible if, like all the people in the book, you manage to find what the body needs. A few people found solution to their cancer: we never talk about this people because doctors have no interest in their experience but they exist and they have a lot of to say and they can give a lot of hope.
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thanks Arline, by the way- do we have the same predicament?
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I'm struggling also with a cancer so I know in some degrees what your husband and you lived.
I had to find solutions, hope, tools for myself as I didn't find anything in Hong Kong among existing hospitals, institutions...to help me.I didn't expect such a big city has nothing appropriate to offer but it's the reality.I hope everything will be fine for your husband, hope , faith in life are an essential components to face cancer and the afterwards.Doing some meditation helps a lot and works better to calm the mind than taking medicines. Doctors never give this kind of advice but try to explore this tool and you will see on the long run that it works and empowers you.
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Hi Arline. There was a pinch in my heart after I read your response. It was a difficult year 2005-2006 for us. But at the end of the rainbow, is
sunshine/ I still have him. Every morning when we wake up we've been given a wonderful gift- another day of life so let's make the most out of it.No one can do it for us. During his treatment, he was in and out of the hospital.
white cells, red cells etc. When he felt fine, we always make it sure we do something fun. There was one instance after chemo and he was alright we went to macau to have fun and it was great -I won a lot!! I paid for 1 session of chemo the next month. We tried to find humor in everything we do but just like what I said- when I am alone ,it is just so scary and sad. I gain weight, though(ha ha) I hope you have someone with this journey,Arline. Take care and talk to you in here again.
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hi lammum, annebin, arlina.. What's up with you guys. Hope everything is going on smoothly.
Just to say hi there!!!
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Please bear in mind that even you've finished all cancer treatment (chemo/radiotherapy), you've to keep on monitoring and to avoid recurrance of the cancer cells. Best is to take yunzhi PSP, it works very well and is well-known to cancer patients. For details, visit
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When one is very ill the best way to ease the "Mental Pain" is to listen to classical music.Try "Chamber music",trios,quartets and harped ensemble music.
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Hi Lammum
Congratulations on being cancer-free! Good to know you are feeling much better.
Stay positive!
Send me a PM if you want to chat. Take care
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hi Lammum, great to hear from you. Which hospital did you spent on? Regarding us, my husband will be on his 2nd year this oct 1. he will have his petscan soon- every 5 months. I still have the creeps , Wishing you the best, take care of yourself and enjoy everyday that pass by. Bless you!!
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Try www.cancerfightingstrategies.com
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Hi Lammum,
Fortunately, I didn't have any major medical issues during and after chemo/radio. Though I'm considered cured and cancer-free already, I still go to my gyne-onco 2x a year for pap and ultrasound.
Send me a PM anytime
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hi girls... the other problem now is his weight. After the chemo, radiation and all the steroids that they stuff him.. made him look like Homer (that's what we call him now) and he will reply by saying DUH!!
kidding aside, he is soo overweight and at times or most of the times he gets swollen feet. I kept on telling him to see and ask his doctor about it but he just ignore me and tells me it is all weight related problem - the reason why he have swollen feet. Do you agree with this, Lammum, Annebin? Anyway, he will be seeing the doctor next Oct. 5 for his every 6th month check up. FYI, He also go to QMH
and Dr. Diana Sui for these check ups. He combined the private and public practice for reference. Take care the 2 of you.
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Dear all, after reading your discussion, as the deputy general manager of one of the private cancer institute mentioned above, I would like to apologize if we are not able to provide you with the best advice and assistance. I fully understand that getting cancer knowledge is the power to overcome and handle the disease but also support from family, friends and medical professionals are very important factors. If I could be of any assistance to any of you, please feel free to contact me or leave me a message, I will do my best to answer.
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hi leetyhk, I would like to participate with your volunteer work if you have any. pls inform.
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Sure, if there are future chance to share your experience to other potential patients during some public talk. Would you be interested?
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i would like to help in a different way. And FYI, it is my husband who was a cancer patient. Do you have any other volunteer jobs.
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What does the Hk Cancer Fund offers today to western cancer patients?
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hi 5star, how is it with you? wishing you the best to come
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