Posted by
poison
13 yrs ago
Hi to the readers,
I want to know if anyone has this disease here in hk? What treatment are you getting or did you have your colon surgery? Can anyone recommend a really good and experienced colon surgeon in hk?
Thanks
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Hi
I have Crohn's Disease and I see Dr CK Ching at the Adventist hospital for medical needs, and Dr Judy Ho at the Queen Mary Hospital for surgical consultations.
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Hi - not sure if you still need an answer to this as the post was a few months ago, but my girlfriend has UC. She currently visits Dr. Lai Kam Chuen. He is OK although I'm not entirely convinced by him - you should reserve your own judgement though. The guy she saw before that (before we were told he was too expensive) was Dr Hui Chee Kin - this guy is the real deal - excellent manner, explains things well - a really great doctor. Both these guys perform sigmoid / colonoscopies but I don't know about procedures beyond that.
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Hi,
Thanks for your reply.. This UC is not a curable disease so i am always open for answers to this post.. How long has your gf been a patient of this disease? Which hospital does she go to and what kind of treatment is she receiving right now? sorry for lots of questions..but its always best to know about things that are going to be with us for a long time. My husband has this disease and its been years and years..He sees Dr Steven Tsang in Tseung Kwan O hospital. He is good.He has done sigmoids twice and knows alot. But i want my hubby to be in the best hands if surgery options come our way.
Dr Hui Chee Kin-in which hospital is he in?
thanks
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krips
13 yrs ago
To: poisin,
Your are totally and absolutely wrong about UC being uncurable EXCEPT in the concept of western medicine. I suffered from this in 1988 and had treatment in Hospital with enema for 10 days & steriods (slsophirin --- spelling incorrect) which I was given to take during the time in Hospital 8pills x3 times daily (proved too heavy for me) This was reduce to 4 x 3 times a day. After hospital period was asked to continue medication. I myself reduced the dosage as I know my own body reation. Fortunately my mother in law informed me and provided me with an Herbal powder from India (extremely bitter) which I started to take (using my inovation by taken a teaspoon with a little butter + pinch of the herbal powder on top holding the teaspoon over my morning hot cup of tea and putting this to the back of my throat and letting it slide down the back of my throat (no bitter taste) and 3 months later NO MORE UC. Ten years latter when for check up in HK SYP & QM and everything was clear --- this surprised the Dr. because it is a re-occurring disease and she ask me how ... I told her because of the herbal medication SHE ask for details .... I told her this would not help her because WESTERN MEDICAL requires testing in controlled enviroment (history does not matter). So if you are interested contact me ( I am not interested in money for this) and I will need to know exact details of the UC problem/history to give you more information to see whether this will help. Regards krips
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Hi everyone, I am really glad that this thread exists! Thanks in advance to anyone who can answer my question below!
I am German and suffer from UC since 2012. Currently I receive a medicine called Infliximab (Remicade) every 8 weeks here in my county. The cost for this medicine is about 6.000 US$ every time, so about 30.000 US$ a year. In Germany the cost is fully covered by public health insurance.
Now I have a job offer from a company in Hongkong and it was always my dream to live there. I am thinking how much money I would have to spend for this medicine as foreign resident with employment visa and ID card who can benefit from the public health care system.
Will the cost for this medicine be covered by the public health care system or at least to a certain percentage?
PLEASE help me with this if anyone has experience with Remicade/Infliximab in Hongkong!
THANK YOU VERY MUCH IN ADVANCE!!!!
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Hi Chris,
Really sorry to know that you are suffering from UC.Did Remicade work out well for you? My hubby has had it for around 6 yrs now and he has never tried Remicade although his doctor did suggest him to give it a try.And the cost which his doc mentioned was between HK$7 to $10,000 everytime.My hubby wasnt willing to go for it so we didnt go into any further details.
I'm really sorry that I'm not really sure about the public health care system.
Maybe someone here will help you out soon.
I hope everything works out for you.
Good luck
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I have Ulcerative Proctitis. The government doesn’t cover the cost of medicines and my private cover only covers X amount for "pharmacy" medicine (about 3.5k/year HKD). I can tell you that Salofalk Granules cost about 700$ HKD/box and Salofalk Enema cost $1500 HKD a box (one box has 7 enemas). Its actually *cheaper* for me to fly to Australia and stock up on a year’s worth of supply and bring it back then to source it locally. In Australia one box of enemas is $250 HKD for a comparison of prices.
I can't imagine how much Remicade would cost. Tread carefully. If you need an exact cost PM me and I can ask my Doctor here. You also need to get the exact details of your private cover. Its possible, but I am doubtful, they would cover a fraction of the cost. Public health is no option either.
I also recommend trying to control your disease via diet, for example the Specific Carbohydrate Diet. I have found that this approach has relived my symptoms enough that I don’t have to use the meds so often and so its cheaper.
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Anyone know a doctor in HK who will prescribe LDN (Low Dose Naltrexone)? Seems most native doctors are a little to conservative to try anything to new.
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hi solomani
I have done a little research on LDN(Low Dose Naltrexone) but unfortunately I havent been able to find it here in HK and Im sure the doctors wont agree on prescribing it either.It may be found in some expensive private pharmacies but am not sure.I want to try it too.
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Poison, there is a legal way to get it but you need to ship it from India. PM me if interested.
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For those interested the uBiome project is looking for more people from HK to help build a database of the flora in our guts. Since all IBDs seem to have the same root cause - bacterial imbalance of some kind - its well worth supporting the project. Its a citzen science project. Basically crowd-funded.
I dont think I can post URLs so you will have to do some googlign to find the project.
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Vic88
11 yrs ago
Hey just wondered if anyone here is on the scd diet and based in hk?
I'm just starting out and finding it tricky to stick to.
Any advice would be much appreciated =)
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