Neurofibromatosis Type 1



ORIGINAL POST
Posted by Matilda 20 yrs ago
Sorry if the replies have upset you. Only trying to offer information.


Lynne

Matilda International Hospital

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COMMENTS
Ed 20 yrs ago
Just to clarify, we invite Matilda to answer questions on the forums. They have medical specialists who spend time and effort to provide accurate and objective answers and we very much welcome their participation on the forums.


Also, on numerous occassions, when asked for recommendations for health care Matilda have acutally recommended facilities other than their own (I recall a recent recommendation to use public hospitals for heart surgery).


Matilda is far better placed to answer questions on this forum than any of our site users and we would like to encourage their continued participation. As you can see, when you ask that they not provide advice or assistance, you end up with no answer....

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Ed 20 yrs ago
You have asked for a recommendation for a good neurologist.... if anyone would be able to make a recommendation it would be Matilda Hospital.


Once again, Matilda does not use the forums to advertise - we have asked them if they would be willing to pass questions to relevant specialists at the hospital who will provide qualified answers to the many questions that are placed on this forum that are beyond the knowledge of most visitors to this site.


We invite experts in different fields to participate on a number of forums on the site and we feel this adds tremendous value.

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Ed 20 yrs ago
My point is that I value Matilda's contribution to this forum and I do not want them to be discouraged from participating.


I will also be inviting other medical specialists to answer the questions.


If you do not like to see them contribute then simply ignore them.

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bcss121 19 yrs ago
dear ??,


i'm not sure if i could be able to help to answer your question now as it's already 43 days ago when i just saw your question by chance. i'm a NF2 patient and have just had a surgery on my spinal tumour. i had a previous one in jan this year. i will have another surgery in mid aug on my brain tumour. you should know that NF (no matter 1 or 2) is not curable at the moment as this is a genetic disorder. my doctor's name is dr. fung ching fai. his office is at tung ying building, tsim sha tsui. tel no.is 27243166. he's a neurosurgerist.

hope the infomation can assist a bit. peggy

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